Layla Grace Children's Cancer Research Foundation

In the beginning, there will be a lot for you to process. Keeping a list of what you want to ask your child’s doctor is a good way to make sure you get the information that you need to start making decisions for the treatment plan. Below are some of the questions we thought were important for you to find answers to.

Photo Gerolf Nikolay

About the cancer

• What kind of cancer does my child have?

• What is the stage and histology of my child’s cancer?

• What is the survival rate for children with my child’s stage of disease and risk assignment?

• Is there anything unique about my child’s cancer that makes their prognosis better or worse?

• How do I get copies of my child’s test results?

• Should I get a second opinion?

About treatment

• What are my child’s treatment options?

• How long is the treatment plan?

• How many children have been treated on this protocol?

• Can you give me a detailed outline and schedule for my child’s treatment plan?

• What is the goal of treatment? To cure the cancer or stop it from growing?

• What are the realistic goals of this treatment?

• How and when will I be able to tell if treatment is working?

• Has my child’s cancer metastasized? To what extent?

• What is the difference between a central line and a portacath? What is the best option for my child?

• How often will my child’s response to treatment be evaluated?

• If this were your own child, what would you do and why?

• Could I speak with parents of children who have completed this treatment plan?

• Are there any resources or websites you recommend for more information?

• Who should I talk to about my health insurance and payment issues?

About the doctors

• Which specific doctors at this center will treat my child? Which doctor is primarily responsible for my child’s care?

• Who will perform my child’s surgeries?

• How many patients have your treated with my child’s diagnosis?

• Have you published any studies about this treatment?

About home care

• How do I handle home healthcare?

• Is my child at special risk for infection?

• How can I protect my child against infection?

• What should I do if my child has a fever?

• Are there any support groups in my area?